News

News
Rare Disease Forum

Introducing the EPHMRA Rare Disease Forum.

A new space for members to connect, share, and strengthen best practice in one of the most complex areas of healthcare research.   Rare and ultra rare diseases demand more from researchers: • Small, vulnerable patient groups • Disease heterogeneity • Limited awareness • Fragmented healthcare structures • Wide geographic spread
sponsors
A big thank you to our 2024 conference sponsors! EPHMRA have had fantastic support in being able to gain sponsorship for the following items:
Meeting
‘High-Power Patient Involvement: Using Choice Modelling to Inform Forecasting / Uptake’   In this session we will share how methods and tools used in later stage NIS (noninterventional studies) can also be light-weight tools earlier in the product lifecycle and provide quantitative patient/caregiver input with robust analysis - without the burden of a full NIS.  
Masha
‘Closing the gap between segmentation and real life: how AI can help to identify levers for and develop more targeted approaches’   This paper is being presented by Masha Eletskaya, Lumanity.   For more information, visit – https://ephmraconference.org/
Webinar
Join us for an informative webinar which will focus on giving our members some hints and tips about ‘Doing market research in Mexico’.   Covering the healthcare system, sampling, accessing respondents, key factors to consider.   𝗦𝗽𝗲𝗮𝗸𝗲𝗿: Simeon Pickers, Psyma 𝗖𝗼𝗻𝘃𝗲𝗻𝗼𝗿: Hilary Worton, APLUSA and LDC member   𝗔𝗯𝗼𝘂𝘁 𝗦𝗶𝗺𝗲𝗼𝗻 𝗣𝗶𝗰𝗸𝗲𝗿𝘀
Peter
See the paper: Segmentation in the time of Omnichannel, at the 2024 EPHMRA Conference.
Lucy
Join us at the 2024 EPHMRA Conference and hear about the paper... ‘Applying a ‘human’ approach to strategy development - co-creating a road map for Parallel session customer engagement’
Meeting
See Paul Griffiths, Client Advocates present his paper... ‘How Agencies and Pharma clients can collaborate to make sure that research and Parallel session insight is seen as an investment, rather than a cost’ at the 2024 EPHMRA conference.
analogue
Looking for an interactive session around Analogues in Forecasting? Then this is the Conference session for you!   In this panel discussion, entitled - Analogues in Forecasting – Bread & Butter or Marmite? - We will brief the audience about analogues, talk through a couple of case studies on how they are being used and discuss their merits and pitfalls.