A new space for members to connect, share, and strengthen best practice in one of the most complex areas of healthcare research.
Rare and ultra rare diseases demand more from researchers:
• Small, vulnerable patient groups
• Disease heterogeneity
• Limited awareness
• Fragmented healthcare structures
• Wide geographic spread
And the research implications are even greater.
We’re bringing experts together to discuss what works, what doesn’t, and how we can keep improving our approaches.
Want to join the conversation?
Register your interest.